World Thyroid Register -
Future health of >300,000 in the UK alone at risk if vital thyroid studies are not published - PLEASE HELP
 
Hundreds of thousands of people in the UK have ‘normal’ blood tests for thyroid chemistry but clinical signs and symptoms of hypothyroidism. In the UK, Europe and USA doctors are reluctant to diagnose and treat on the basis of clinical diagnosis in patients with normal blood tests resulting in untold suffering in this group of patients. They are left to suffer with wide ranging problems including lethargy, slowing down of all functions, muscle and joint complications, digestive problems, infertility, cognitive and mental difficulties often being labelled with depression, and related illnesses such as ME, CFS and fibromyalgia. The tragic consequences include loss of livelihoods, homes, families and friends.
 
The medical profession continues to fail them and there is urgent need for research in this area to help understand the wider implication of clinical signs and symptoms as well as blood tests on correct diagnosis and treatment of hypothyroidism.
 
Dr Gordon Skinner was one of the very few doctors who argued that blood tests should not be pivotal in the diagnosis and treatment of hypothyroidism in this particular group of patients and treated patients in this category with encouraging results. It is interesting that Dr Skinner was not doing anything new nor prescribing new medication for the treatment of hypothyroidism; patients were diagnosed and treated for this disease based on clinical signs and symptoms and medical examination before blood tests were established.
 
In 2000 Dr Skinner published a study of 139 patients from his clinic in which he reported that clinically hypothyroid but biochemically euthyroid patients had favourable clinical response to thyroid replacement. Dr Skinner saw thousands of patients since then and his clinical work has accumulated fundamental information on the relationship between clinical signs and symptoms and blood tests before and after treatment in this group of patients. The information amassed by Dr Skinner’s clinic is unique because very few doctors treat patients who are clinically hypothyroid but biochemically euthyroid and thus there is no other source of such detailed data.
 
It is crucial to collate and analyse this data and publish the findings in scientific journals to ensure this valuable information is presented to the medical world towards improving the care of these patients.  This work is now being supported by the Vaccine Research Trust and we are embarking on a major fundraising drive to maintain this vital research which could prevent unimaginable suffering in people who say they are just surviving with no quality of life.
 
We need £65,000 per year to support this research over the next two years and ask all of you out there to help us raise this by donating, organising fundraising events, and asking anyone you know to fund us. Any amount of donation will be most appreciated.
 
WITHOUT YOUR HELP THIS CHANCE TO MAKE A REAL CONTRIBUTION TO KNOWLEDGE IN THIS AREA OF MEDICINE WILL BE LOST.PLEASE, PLEASE HELP US.
Thank you.
 
Afshan Ahmad PhD
Director of Research and Development, Vaccine Research Trust
Please donate on: https://www.justgiving.com/vaccine-research-trust
If you are a UK taxpayer don't forget to ask for ‘Gift-Aid’ as the government will increase your donation by 25%
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